(See the original post in LinkedIn here.)
One week ago, I made the above post in LinkedIn. This issue has been something I have been trying to address since returning to Singapore in late 2016. Back then, “inclusion” was not the huge buzz-word that it is nowadays. Large Autism forums at the time were being held without a single Autistic person or Autistic researcher present in the room. The voices of persons with disabilities were seldom ever heard at all, although there were beginnings of ‘feel-good’, ‘nice-nice’, ‘be-kind’ videos floating around. Autism “awareness” was only about “lighting it up blue”, and information about autism was the domain of the non-autistic, self-styled ‘experts’ with degrees in psychology but not an iota of lived-experience at all.
Since then, much has changed. Autistic, deaf and disabled voices in Singapore have slowly emerged into the foreground. This is a great thing. I am unsure whether my robust, sometimes blunt and brusque fist-shaking had very much to do with instigating change, but I do know I did play some small part in the churning, swirling, stirring process, alongside a small group of brave and outspoken PWDs and allies from the Disabled People’s Association, other arts practitioners, and allies in the government. From the ground, I know our PWD+allies’ (some almost reckless) outspokenness has opened tiny holes in the thick fog for other younger advocates to step through, and there are many capable disability advocates now doing very well. It was truly a community effort, of which I was merely a tiny spark. I have left the Disabled People’s Association, our entire old Board of Directors stepped down and made way for a brand new team. I am hopeful that new energy will bring better conditions. But we still have a long, long way to go.
Continue reading
Dawn-joy Leong 