Dreams, Passion and Purpose – SUSS 2023 10 10 Convocation Speech

As promised to some of my friends and followers of my pages, blogs and website, here is the transcript of my convocation speech tonight at the SUSS Convocation 2023: Session 3 – Undergraduate Programmes (NSHD). The Youtube ‘live’ video (link below) does not have captions, so I have put my transcript here.


Mr Aaron Tan, Member of SUSS Board of Trustees; distinguished guests, graduates, ladies and gentlemen, thank you for this honour. My heartiest congratulations on this very special occasion.

I cannot tell you how to make a lot of money, rise up the corporate ladder, or how to achieve worldly success. I have never managed any of these. I owe my very existence today to a few loyal friends, my one supportive sister and a gentle yet magnanimous creature called Lucy Like-a-Charm, a Greyhound rescued from the cruel racing industry in Australia.

(Slide 1 – Lucy Like-a-Charm, a black Greyhound is lying on a white puffy quilt, head upright, looking at camera, ears perked up and spread out, mouth open in a happy smile.)

So, what can an ordinary person like me bring to this milestone occasion? Please allow me to share a glimpse of my life’s journey. I was born in 1965, the year of Singapore’s independence. Like many in my generation, I found out my Autistic identity only in my early forties. I’ve also struggled with a lifelong, painful medical condition.

My childhood dream was to become an artist, musician and scientist. I loved animal science and multidisciplinary arts. Learning was smooth sailing at first when I was allowed to pursue my own interests at home. Sadly, my learning journey was derailed after I entered mainstream education. I went from being labeled a “kid-genius”, to “rebellious” teenager, and onwards to “lazy, useless bum”. One art teacher told me I would never become an artist because I could not colour within the lines. By the way, I still do not colour within the lines.

After a lot of stubborn perseverance, I managed to gain an undergraduate place to major in music at the University of Hong Kong. There, in Hong Kong, I met professors who recognised my unusual learning style. Nobody talked about autism at that time. I was thrilled to be encouraged to bring difficult questions to class — my professors were happy to push boundaries and expand their own paradigms. I am most fortunate to still be close friends with two of my early mentors to this very day. 

I returned to Singapore after graduating, and unfortunately spent the next twenty years employed by a former family member in a job that I was most ill-suited for. My medical condition constantly triggered, and I felt as if my entire mind and soul had been stolen from me. During those bleak years, I still managed to author and illustrate three music textbooks widely used in Singapore schools; write and record two albums of my own songs; and produce, direct and perform in two public music concerts. 

In 2007, at the age of 42, I finally broke free and returned to the University of Hong Kong to pursue an M.Phil in music composition. Faced with a confusing social situation, struggling with my illness, dealing with my father’s death and family disintegration, I was pushed to the edge of mental and physical breakdown. I sought help from a psychologist and that was when I found out about my Autism. It was a pivotal moment for me, a vindication that I was not deliberately bad, rebellious or lazy, my brain merely functions differently — simply put, I was like an Apple computer living in a Microsoft world. I am disabled according to the social model of disability. In 2012, I was awarded a full Ph.D scholarship by the University of New South Wales in Sydney, Australia. I adopted Lucy that same year and with her, began the best ten years of my life.

“Like-a-Charm” was Lucy’s former racing name, and I kept the name because it rang resoundingly true. Lucy became my autism anxiety assistance dog, and was the first Greyhound assistance dog in my university and, in fact, all of Sydney, inspiring others, especially Autistic persons, to adopt and retrain rescued Greyhounds as assistance dogs thereafter. We were interviewed by television, radio and newspapers in Australia about my research in autism and multi-art practice, Greyhounds as assistance dogs, and autism and disability awareness. She was also the first Greyhound to be invited into Parliament House during a campaign in 2016 to ban Greyhound racing.

Much more than a pet or assistance dog, Lucy was my creative muse, research assistant and the driving force for my PhD dissertation on autistic embodiment and alternative non-human sentient and material empathies. In 2016, we graduated together with the highest honour, the Dean’s Award.

(Slide 2 – Convocation – Dawn-joy and Lucy receiving their PhD from the Chancellor, UNSW, Sydney Australia, 2016)

Now, don’t get me wrong, those years were wonderful, but still no easy breeze. I faced intense internal and external challenges, which I don’t have time to tell you about, but I had Lucy with me. She was my rock of stability and strength throughout. In fact, she saved my life just a few weeks before my PhD submission, and I am alive today because of her. Lucy taught me how to recognise my own vulnerabilities and strengths, and to accept with gratitude and grace support from others.

Finally, I’d like to end my story on the importance of Dreams, Passion and Purpose. I am blessed that three of my Dreams did indeed come true, and with many wonderful bonuses too.

I was 7 years old in 1972, suffering a painful attack of mouth and throat ulcers where I could barely open my mouth or swallow, when I dreamt that I had a voice and I could sing. In 1999, I wrote and recorded my own collection of songs, a dream come true that a precious friend helped to finance. The bonus was that my existential questions in these songs finally found resolution many decades later, in Lucy.

I also dreamed of a transdisciplinary art-science PhD from a very young age. After forty years, I received a full PhD scholarship. As a child, I yearned for Love, and went looking in all the wrong places. Well, I finally found the Love of My Life, Lucy Like-a-Charm, who brought me a Perfect Love that no human or non-human ever could.

I’ve lived a privileged life, but I also faced great persecution for having Dreams at all, ironically from some of those I thought were closest to me. I not only worked hard, but I fought very fiercely for my Dreams, they didn’t just drop onto my lap. In the process, I lost most of those I once considered close friends and family. However, I found truly loyal friends both old and new who helped me along my journey, and my one good sister has never wavered in her support for me.

Since returning to Singapore, with Lucy by my side, I have exhibited my art locally and overseas, engaged in autism research, conducted workshops and given talks on autism and art, mentored aspiring artists with disabilities, been interviewed and featured in various media, delivered a TEDx talk, and volunteered at disability-focused organisations.

(Slide 3 – Dawn-joy and Lucy Like-a-Charm speaking at TEDx 2018)

Gratitude and humility now lead me onwards, as I am nearer the end than the beginning of my journey. I suffered two losses this year. One of my very best friends passed away from cancer in late February. Two weeks later, in March, Lucy died, at the age of 14 human years. My promise to Lucy on her death bed, was to complete our Magnus Opus, the hardest work I’ve ever attempted, an autobiography in the form of a multi-art multi-access fantasia, entitled, “Wake Up in My Dreams”, in honour of Lucy’s legacy of Love and Truth.

(Slide 4 – Full frontal head shot, digital composite portrait of Dawn-joy and Lucy Like-a-Charm emerging from both sides of Dawn-joy’s face.)

Thank you for bearing with me, and congratulations once again! Lucy and I wish you all the very best that life can bring, and may your dreams come true in the strongest of ways, beyond even your own imagination.


SUSS Convocation 2023: Session 3 – Undergraduate Programmes (NSHD) – full video

(My speech – around 44:29)

CNA Interview for the Goh Chok Tong Enable Award

This is my latest CNA interview: “She didn’t know she was autistic until she was 42. It changed her life.”

If there is only one takeaway from this interview, I’d like it to be this quote:

That people are worthy, regardless of whether they win an award or not.

Illumination

Here is such an exquisite review by my friend, Autistic artist, Sonia Boué, of the beautiful film by Project Artworks, “Illuminating The Wilderness.”

Sonia has an amazing way with words. It doesn’t need to be a lengthy piece, in fact, her words are so lithe and fluid, yet exquisitely penetrating and precise, that I am left catching my breath at the sharp, deft unlocking of a wealth of unspoken, unworded meaning. And, in an uncanny way, each and every time I am incapable of bringing into the tangible realm what I wish to express, somehow, Sonia’s words will give strong yet delicate voice to the rhythmic humming resonating in my being.

“How rare it is to see people with complex needs just being. Humming is natural, and nothing is dressed-up; this isn’t ‘special needs’ for consumption. There’s no attempt to exoticise or glamorise our being. The camera captures ordinary moments valuing autistic language and expression on our terms.”

This is exactly what first hit me right there at my core, when I first watched the film. It unpacks our meanings, our world, on our terms.

Actually, I watched it three times, each time catching different details and sensory echoes. In fact, I’ve also run it over and over again in the background, allowing different aspects of it to weave in and out of my consciousness, meandering and winding around caverns of sensory subconscious as I engage in different light tasks. I love the clattering sounds, the staccato, the ripples, the appoggiatura and trills, the sudden drop in levels, the pitter patter of rain like crisps dancing inside a foil coated box…

And then, Sonia says this:

“It suddenly strikes me that this film feels like home to me because this is where I began. There’s a circularity in writing this piece for Project Art Works, which underlines its immense importance as an artwork. As a young art therapist, I was employed in a residential setting for adults with complex needs; not knowing that I was myself autistic until very many years later. Since then, I’ve come to recognise aspects of myself in those with more complex needs than my own, but as a younger person I had no way of understanding why I was so drawn to this world. Years of my life have been wasted and lost.”

Wasted and lost! Wasted AND lost! WASTED and lost! Wasted and LOST! These words sound like bells, whose echoes and reverberations fill my chest cavity, pounding against my rib cage. I think of the bells inside Magdelen College Tower on the first of May.

Everything is there, embedded in Sonia’s three words. This world that is so simply presented in the film, a realm so full, so abundant with wonderment.

When I first read Searle’s review, pronouncing it “problematic” without any further explanation, a searing hot rage shot through my core. I was shaking with fury, yet hurt, it brought back horrific wound trauma, I know that kind of dismissal too well, flicking away the rich tapestry of my multi-textured world like crumbs off a table, that neuronormative gesture of disdain so ponderous, so callous, so crude in its garish ignorance.

But then, after the film had played umpteen times like a comforting echo in my senses, I now feel sad. Sad for Searle and those like him, who are unable to access and luxuriate in our world, who stand outside and sweep at crumbs on neuronormative cafe tables, never noticing the flow, the undulating rhythm, the shuddering patterns, and the tiny clicking, chirping sounds the specks make as they fall, fall, fall to the groaning, giggling ground. A tragedy, to me, not to be able to resonate with the richness that is our multidimensional universe. This is the true loss. Yet, do they know of this loss?

Sonia’s words again, in her other article responding to Searle’s review:

“This film speaks to me in my language. This is mysensory world. For me, Illuminating the Wilderness is a rare and beautiful thing, and I feel sorry for those who can’t see it. Our immersive connection to the sensory world can feel vast and expansive – it is beyond words. This is supremely exciting to us, and joyfully fulfilling. It’s why we don’t need to people so much – we have this!”

Yes, we do indeed, and what a wonderful world it is!

neurodivergent world

Clement Space @ Playeum 2019 – Dawn-joy Leong

Seems as if I’ve been involved in quite a few “firsts” in Singapore lately. The most recent was the very first Autism/Neurodivergent-Led, Disabled-Led Art & Design residency, which was support by the National Library’s library@orchard branch, and yesterday saw the soft opening of Singapore’s first Neurodivergent immersive and interactive space – crafted by two autistic artists and two artists with Down syndrome, curated by Esther Joosa and Imran Mohamed for Playeum, a centre for children to discover creativity in multiple ways. Continue reading

bloviation & the sacrificial lamb

My recent casual blog post, musing on Arts and Disability, and the devastating effects of non-disabled colonisation of the disability conversation, theory and practice in any field, with a focus on the arts, simply because this is my field of research and praxis.

“Perhaps it is time to take the entire conversation back and situate it on our own platform – the Actually Autistic / Actually Disabled stage. One that we choose for ourselves, not that which is designed and built by the non-disabled colonising forces. One in which there is no prerequisite social-political posturing of ambiguous, veiled or hushed up mumblings, no copious mists of gas lighting, and no contemptuous slime of condescension. Just honest truth and a light shining onto a path ahead clear of the debris of gurgling bloviation. Is this even a possibility, I wonder?”

Autism & Mental Wellbeing

Back in Singapore! Hit the ground running. Two more lectures upon my return from Hong Kong.

“Autism & Neurodiversity – lived-experience & the way forward” – NUS Psychology. Thank you, Dr. Iliana Magiati, for the invitation to address your class of future psychologists on neurodiversity and actual autistic insights into autism.

 

“Autism, Mental Wellbeing & Higher Education” – NUS Office of Student Affairs. An important topic. Autistic students in universities have to navigate a minefield of sensory, social, political & executive function complexities. Specific considerations and supports / accommodations are necessary. First, let’s look at autism from the viewpoint of Neurodiversity, ditch that pathological model, it doesn’t help at all!

(For enquiries on talks / workshops / training sessions, please email me at dr.dawnjoyleong@gmail.com)

Autism & Neurodiversity in Hong Kong

HKU-CGED-Talk

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I was in Hong Kong recently, speaking on Autism and Neurodiversity. An amazing week. Hope to see you again soon, Hong Kong!

(For enquiries on speaking engagements, please email: dawnjoy@mac.com)

Acknowledgements

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Sonorous Repose – Lucy Like-a-Charm 2015 by Dawn-joy Leong     (please do not reuse without seeking prior permission)

Dear Friends and Supporters,

We have made it! The PhD has passed muster and now it’s time for acknowledgements.

 —-

Scheherazade’s Sea – autism, parallel embodiment and elemental empathy.

 Dawn-joy Sau Mun Leong, UNSW Art & Design, April 2016

Dedication:

To my father, Dr. Leong Vie-Ying (1930-2007).

Acknowledgements:

This work would not have been possible without the following:

Deepest gratitude to my supervisors,

Professor Jill Bennett and Dr. Petra Gemeinboeck,

for your patience, guidance, advice, support, and for believing.

Thank you, Dr. Sally Clark, for your advice, encouragement and support.

My Lucy Like-a-Charm

My family:

Thank you, mother, Molly Chye Gek Ong, for your care and fortification.

My beloved baby-sister and faithful champion, Althea Leong,

thank you for always being here, there, and everywhere for me.

Dear brother-in-law, Robin Sing,

thank you for your patience, sustenance and unquestioning support.

My canine nephews, Bizcuit and Tiny Sing

Thank you, my friends who have played important roles in my journey:

Yee Sang, Ho

Rick Feedtime

Minh Vuong

Kateryna Fury

Colin G. Marshall and Misty Marshall

Shan Patterson and Sally Patterson

C.J. Wan Ling, Wee

Margie Anne Edmonds

Brad Beadel

Gavin Koh

Boon Ling, Yee

Shane Fenton

Andrea Kingan

Rosemary Wilkinson

and

Everyone who has walked a part of our journey alongside us, however briefly, every single moment has mattered.

The Big Anxiety Project

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The Big Anxiety Project

The BIG Anxiety Project is an innovative citizen science venture developing creative approaches to health research and data visualization.”

Lucy and I are honoured to be a small part of this amazing project, which kicks-off on 5 June 2016, at the Museum of Contemporary Art, 3-6pm, level 6, with this interactive talk-cum-discussion session.

Friends in Sydney, if you will brave the weekend’s wet and wild weather, please do join us at this interactive event.

If you are not in Sydney or unable to attend the above event, please take part in the Big Anxiety Project’s survey on anxiety at the Black Dog Institute: click here!