Lucy Like-a-Charm – Elemental Empathic Resonance.

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Author’s note:
This piece took me awhile to complete, because I have been struggling with the devastating aftermath of Lucy’s death on my mind, body and every part of my existence. I was invited some time ago to write a reflection for a blog-journal, but upon submitting it on 4th July 2023 at 14:22 Singapore time, I was told by the editor (in the UK) that they will push back my article to end July, because the editor was too busy with other things. Coincidentally, they have just published another piece expressing almost identical thoughts, though written in a completely different style, of course. I am fine with that. The more people asking the same questions, the louder our voices become.

I have therefore decided to put mine here, unedited, with date and time reflecting the exact moment my piece was submitted via cyber-waves into the Great Unknown. Whether or not the journal’s editor decides to publish it in the near future, when and with what edits they deem fit, is immaterial to me. The Artist respects the autonomous entity of The Work, which will forge onwards along its own inexorable path, free from the tyranny of control and manipulation at the hands of humans preoccupied by and with human-centric glorification and maniacal demands of human ego. After some deeper contemplation, I feel that The Work, in this embodiment, is telling me that it would like to be launched from this Clement Space, an interstice created for me, for us both, by Lucy, because it is in its very purest essence an intimate tribute to Lucy, and to her and only her, do I really owe anything at all. When the Artist frees The Work, the Artist shall also be emancipated. I love you so, Lucy Like-a-Charm, thank you for teaching me such profound sensing.

Content warning: suicide and death is discussed in this article.


Lucy Like-a-Charm – Elemental Empathic Resonance.

For ten years and eight months, I awoke and drifted off to sleep gazing into the eyes of the purest Beauty I have ever known, my heart brimming over with awe and gratitude that she was mine to have and hold: this amazing canine called Lucy Like-a-Charm, rescued from the cruel Greyhound racing industry in Australia.

Lucy entered my life on 11th July 2012 in Sydney, Australia, during the first year of my PhD candidacy at the University of New South Wales. I did not know then, but that moment marked the beginning of the very best years of my human existence.

I was unaware of my Autistic1 identity until my early forties, hence, I belong to the category frequently referred to as the “lost generation”.2 During my childhood, I was surrounded by pets — white mice, guinea pigs, rabbits, ducks, chickens, fish, and dogs. I loved the Dr. Doolittle stories by Hugh Lofting, which I read over and over again. Even though I knew these stories were fantasy, I was nevertheless convinced that non-human animals communicated in their own languages, and we humans could do so with them, if only we learned how. Back then, people just laughed at me, but today, more than fifty years later, animal communication has become a subject of extensive study and practice. At the age of five, I developed persistent painful, visible physical symptoms that confounded medical experts, so they said it was “psychosomatic”, and people accused me of deliberately making myself sick, as if I was gifted with such a super power! Medical science has since progressed a long way, and doctors now presume it is probably an autoimmune condition (still unconfirmed) under the broader category of vasculitis.

Looking back, I realise that most of my struggles were the consequence of society’s inflexible, prejudicial attitudes towards conflicting divergences. As if chronic illness were not challenging enough, navigating an alienating human social system with its sensorially assaultive built environments became increasingly perilous as I grew older and the politics of neurotypical human interactivity became more and more convoluted. Like many Autists in similar circumstances, I found solace in the non-human domain: spending time with my pets and other creatures, plants and trees in the garden; engrossed in my chemistry set; reading, creating art and music; and collecting favourite objects. Here, in this vibrant ecology of wonderment, instead of being a hindrance or anomaly, my Autistic heightened senses, attraction towards detail and minutiae, and fascination for rhythm, pattern and order found mellifluous reciprocity.

Humanity considers itself superior to the non-human, a perception I suspect is based on what we humans do not know, rather than what we know, about the non-human animals who share our earth, in close proximity and beyond. Between us, Lucy was the finer being by far. She carried me into a dimension of symbiosis far richer than any relationship I’ve ever had before — whether with my pets or the few good humans I know and love. She has never once failed me, but I, maladroit human, have failed her over and over again, each time being humbled by her forbearance and forgiveness. No human possesses that capacity and strength of heart and soul. Lucy understood my expressions many times better than I hers. She taught me our own secret language of exuberant joy, kaleidoscopic colour, thrilling exhilaration, quirky eccentricity and reverent wonderment. For more than a decade, I completely forgot what loneliness felt like.

Numerous studies reveal that suicidal thinking and suicide rates are disproportionately high among Autistic people.3 Lucy saved me from suicide in 2016, during an intensely traumatic incident just weeks before the deadline for submission of my dissertation. Pressing her front paws hard on me, she awoke me from my dissociative state to her presence.4 In that instance, a simple thought entered my mind: “What would happen to Lucy if I died?” From that moment, Lucy became my reason to live, compos mentis: I was determined to survive because of her. 

As my assistance dog, she challenged stereotypes and transcended entrenched norms. Very early on, Lucy began to perform ‘tasks’ which assistance dogs are specially trained to do from a young age. Lucy was a former racing dog, how could she know? Yet, she knew exactly what I needed for my specific sensory anxieties and lapses in executive functioning even before I was aware of them, and decided of her own accord to help me — demonstrating acute discernment and autonomous choice. Lucy’s behaviour in public also rivalled that of assistance dogs, even before we began official training for the role.

It is common practice that when an assistance dog retires from active duty, the human handler would acquire another, either keeping the old one as a pet or rehoming the dog to someone else. When it came time for Lucy’s retirement, I was asked to consider finding a successor. I, of course, declined, but this brought to the forefront pertinent issues that greatly disturbed me about the system currently in place. Giving Lucy away was out of the question, but I could not even bear the thought of leaving Lucy at home while I take another dog out. Ours was a profoundly intimate connection. How would Lucy feel?

I have since begun to ponder more deeply the non-human animal’s mental and emotional experience and needs, beyond food, shelter and healthcare, and the problematic ways in which we currently practice human and non-human animal relationships.

Lucy was (and remains) a dynamic creative influence on my professional work. The symbiotic nature of our relationship inspired my PhD dissertation about distinct Autistic elemental empathic resonance with non-human entities.5 Observing Lucy’s way of ‘sensing’ precipitated richer interpretations of Autistic sensory-cognitive experiences in my artistic practice. Lucy even helped me to design and choose the materials for Sonata in Z (2015),6 an immersive installation exploring sensory comfort from the Autistic paradigm. From this emerged one of my most popular research trajectories, Clement Space,7 about finding and establishing conducive space for respite and restoration.

In 2021, I presented a whimsical glimpse of our close attachment in a multidisciplinary experimental digital show, Scheherazade’s Sea: continuing journey,8 featuring a cast of professional and amateur artists with different disabilities.

With Lucy, I have thrived and flourished, experienced amazing adventures beyond my wildest imagination, and my work has appeared in print, online media, television, radio, conferences, arts festivals and museums in the USA, UK, Australia, Hong Kong, South Korea, Japan and Singapore. It is therefore a straightforward, unembellished truth to state that I owe my life and worldly achievements to Lucy.

When Lucy died in March this year (2023), I became engulfed by a crushing desolation that I had never known before, and I desperately wanted to follow after her. My entire world crumbled and I reverted to my old struggles with severe insomnia.9 Concurrently, a polyphony of medical conditions, extant and ‘new’, exploded with aggressive violence into the foreground. I do not believe in artists “suffering for art”, but in reality, my very existence has been marked by affliction, a confrontation that Lucy softened and alleviated. In fact, the healing that Lucy brought reached far back into my past. More than twenty years ago, I wrote and recorded some songs expressing existential questions and yearnings, but it wasn’t until I was softly singing and playing these songs to Lucy as she neared her mortal end, that I recognised in a concrete, palpable way how Lucy embodied the answers to all my questions, and she was the ultimate gift of perfect love that I had longed for since childhood.10  My greatest regret is that I had not more consciously apprehended this exquisite truth much earlier. I shall grieve for her to the end of my days.

Epitome of pulchritude, Valiant Princess, tender lover, creative muse, and my moral responsibility, Lucy revealed the infinite prospects of vivid, sonorous magnificence that lie beyond the human obsession for navel-gazing. Yet, I wonder, is it even possible for the limited human intellect and senses to attain such percipience — to discern the susurration of the universe? But I must leave these mysteries to researchers and thinkers of the future who, without a doubt, surpass my own capacity. I made a promise to Lucy on her death bed to live to tell our story, in honour of her legacy. My mission henceforth is thus to focus on completing our ‘memoir-fantasie’, a multimedia autobiography in the form of Fantasia, Wake Up in My Dreams, as a testament to the Love of My Life, Lucy Like-a-Charm.


Endnotes:

1. I use Identity First language – Autistic / Autist – in line with the preference of the majority of Autistic persons worldwide. The premise for this is explained in numerous articles available online. Autistic advocate, Lydia Brown, wrote the following explanatory article in 2011. Lydia Brown, “Identity First Language,” ASAN – Autistic Self Advocacy Network, webpage, accessed 27 June 2023. https://autisticadvocacy.org/about-asan/identity-first-language/

2. Johan Nyrenius, et al. “The ‘lost generation’ in adult psychiatry: psychiatric, neurodevelopmental and sociodemographic characteristics of psychiatric patients with autism unrecognised in childhood.” BJPsych open vol. 9,3 e89. 24 May. 2023, doi:10.1192/bjo.2023.13

3. D. Mandell, “Dying before their time: Addressing premature mortality among autistic people,” Autism, 22(3), (2018): 234–235. https://doi.org/10.1177/1362361318764742

4. An action commonly referred to as “grounding”, a kind of deep pressure intervention that not only provides comfort during distressing situations but also serves to redirect or reconnect persons in dissociative states.

5.  Dawn-joy Leong, “Scheherazade’s Sea: autism, parallel embodiment and elemental empathy,” PhD diss., (University of New South Wales, Australia, 2016), accessed 27 June 2023, https://dawnjoyleong.com/phd-dissertation-2016/

6.  Dawn-joy Leong, “Sonata in Z, 2015”, webpage, accessed 27 June 2023, https://dawnjoyleong.com/performances-exhibitions/sonata-in-z-2/

7.  Dawn-joy Leong, “Performances / Exhibitions”, webpage, accessed 29 June 2023, https://dawnjoyleong.com/performances-exhibitions/

8.  Dawn-joy Leong, “Scheherazade’s Sea 2021 – excerpt ‘Celestial Being’, Youtube video, accessed 3 July 2023, https://youtu.be/iKbekC82VtU ; “Scheherazade’s Sea 2021 – excerpt ‘Lucy Like-a-Charm’, Youtube video, accessed 3 July 2023, https://youtu.be/lNfKW0Y6YQk ; “Scheherazade’s Sea 2021 – excerpt ‘Happy Feet’, Youtube video, accessed 3 July 2023, https://youtu.be/PAIyeZJhZZ4 ; “Scheherazade’s Sea: continuing journey, 2021,” webpage, 2021, accessed 28 June 2023, https://dawnjoyleong.com/scheherazades-sea-continuing-journey-2021

9.  E. Halstead, E. Sullivan, Z. Zambelli, J.G.Ellis, & D. Dimitriou. “The treatment of sleep problems in autistic adults in the United Kingdom,” Autism, 25(8), (2021): 2412–2417. https://doi.org/10.1177/13623613211007226

10.  Dawn-joy Leong, “Lucy Like-a-Charm – embodiment of love and grace,” Soundcloud audio playlist, 9 tracks, accessed 30 June 2023, https://soundcloud.com/dawn-joy-leong/sets/lucy-like-a-charm-embodiment

International Women’s Day 2022 – Interview

I do apologise for not keeping up with this website. I think I need to ask for help here. But I’ll do things cautious autistic style. In the meantime, here is the latest article to emerge on yours truly.

Thank you, True Colors Festival, for making this interview so enjoyable for me, and it’s so encouraging to see my country finally beginning to embrace neurodiversity respectfully. Baby steps still, but everything has to have a humble beginning.

Women at work: Dr Dawn-Joy Leong

(Please click on title or photo to link to the article in the True Colors Festival VOICE blog page. Thank you!)

Scheherazade’s Sea: continuing journey, 2021

Scheherazade’s Sea: continuing journey, 2021, was a year in the making. It was yet again another groundbreaking work on several levels. Personally, I have always presented my “Scheherazade’s Sea” series as a solo artist – creator and performer. This rendition unpacks the continuing adventures of Scheherazade with a brand new approach: Scheherazade was played by the beautiful and talented singer, performer Claire Teo, and joining the team were two other artists, Timothy Lee and Ariel Koh. This made Scheherazade’s Sea: continuing journey, 2021, not only disabled-led (conceptualised, executed and co-directed by me) but also a work featuring a cast of differently disabled artists at various stages of their artistic journeys.

Freelance artists around the world struggle to make ends meet. In Singapore, where the arts is even less valued by society, this struggle can sometimes be very fierce. For freelance disabled artists wanting to turn professional, and departing from the charity models, the scenario is bleak. But artists always hold on to hope, keeping our dreams alive even if by a thin thread. Since Scheherazade first appeared in 2010, my personal and professional journey has been an amazing one, at times tumultuous, but always incredibly thrilling and never boring. It is a story of survival against the odds and unexpected achievements – all of which I owe to my party of valiant human supporters and to Lucy Like-a-Charm. Upon returning to Singapore, I decided that this part of my life’s journey will be one that is actively “paying it forward” for as long as I can create art.

Scheherazade’s Sea 2021, is about newness – finding new friends and loyal supporters, and being gifted the honour and blessing of Clement Space in the form of a differently embodied creature named Lucy Like-a-Charm. In honour of all the people who have supported me so generously in a plethora of ways, I am now using Scheherazade’s Sea to provide practical spaces for other disabled artists in Singapore mentorship and learning experiences they may not otherwise have access to without the benefit of an overseas education. Beyond the narrative and multi-dimensional aspects of the work itself, my intentions were for this work to be a true-to-live yet safe space for professional training and experience for the cast, wherever they may be along their own paths. I can only do this, of course, with continued support from my faithful friends, my younger sister Althea, and my confrère Peter Sau, who began my Singapore journey for me. I was inspired by Peter’s vigour and spirit in his seminal work “Project Tandem” and his role in “The Singapore ‘d’ Monologues,” and am thankful for our serendipitous meeting – because, being autistic, I have no idea how to network like neurotypical people do and so every angel in my life is to me truly a gift of providence. Thank you, Peter!

Scheherazade’s Sea 2021 is also a practice-based research into navigating the realm of the so-called ‘invisible disability’ as well as un-noticed vulnerability, and forging new strategies to artistic practice that provides access in ways that are unavailable in traditional approaches and methods. I am currently working on the final report and will share my findings soon.

A note on why I continue to make this work freely accessible to all, despite having been told to keep away from the public eye in order to pitch it to various festivals and events in Singapore and overseas. When I created Scheherazade’s Sea, way back in 2010, I meant it to be a richly textured work that everyone and anyone could easily partake of, without exclusions or arbitrary boundaries to separate people. That intent still prevails today, and even if it means no festival or big event would now want to feature this work, it is ok. The latter will be a feather in my cap and that of all the cast and crew, most definitely, but I prefer still to stay true to my raison d’être as illustrated here by a picture of Lucy Like-a-Charm, black greyhound wearing a turquoise collar with bright red silk flower, in down position, half her body visible, long slim legs, paws outstretched and facing left, against a textured ‘furry’ beige background, and cursive text in black reading:

“It is not my purpose to ‘fix’ what is ‘broken’ but to empower beauty
in the vulnerable and unnoticed.”
©Dawn-joy Leong 2010

I hope you enjoy the video and if you are a curator, we would, of course, love the opportunity to be featured in your festival or curated collective show if you understand my decision to make this video publicly available.

If you’d like to read my opening speech at the online premiere, please click on this link.

Autism Explained Online Summit – lifetime access

Just a few more hours left to catch the free registration offer.

There’s also a LIFETIME ACCESS BONUS BUNDLE to UPGRADE YOUR SUMMIT EXPERIENCE!

Get it here via my Affiliate link.

Don’t forget to enter BUNDLEDISC for the discounted rate.

Purchasing the bonus bundle doesn’t just give you lifetime access to every session in the summit (providing valuable understanding and support). The bonus bundle also delivers valuable extras to increase your understanding and grow your confidence.

Your Lifetime Access Bonus Bundle includes:

Lifetime access to all sessions delivered as part of the Autism Explained Online Summit
Exclusive Autism Explained Online Summit Workbook
Audio podcast option – listen anywhere with downloadable MP3
Downloadable interview transcripts
Bonus content from each speaker
2 x follow up group coaching calls to provide additional support

Autism Explained Online Summit

Registration Link: https://autism-explained.teachable.com/p/online-summit-free
Register for Free Access here: https://autism-explained.teachable.com/p/online-summit-free

I shall be chatting with Paul Micallef on 18 October about Autism-Friendly Learning Environment, how to encourage learning from within the autistic paradigm, rather than by correction and coercion to comply with neuronormative channels.

Autism Explained Online Summit is a week-long online summit featuring autistic and non-autistic professionals in the field, providing insights and advice to parents on different themes. The line-up of speakers includes Temple Grandin, Peter Vermeulen, Yenn Purkis, Daniel Giles, Andrew Whitehouse, Shadia Hancock, Wenn Lawson, Tom Tutton, Chris Varney, Emma Goodall, Jac den Houting, Chris Bonnello and many more presenting eclectic viewpoints, all in the same space!

And here’s the preview to my session:

Don’t forget to register for your free access!

Joint IHL SEN Forum 2018

Singapore

I’ll be speaking in the panel at the Joint IHL SEN (Institute of Higher Learning, Special Education Needs) Forum on 14 September 2018 at the Ngee Ann Polytechnic. The extended title of my panel speech is: “Autism, Neurodiversity and a Neurocosmopolitan Future.” My workshop (taking place after lunch) will be about “Embracing Neurocosmopolitanism: different ways of empathy and communication.”

Free admission but registration necessary.

More details and registration here: Joint IHL SEN Forum 2018

Autistic Thriving @ TEDx

This is the complete unedited script of my TEDx speech, delivered today amidst a flurry of technical failures and farcical-comedic twists. (Read about it here.)

AUTISTIC THRIVING
Dawn-joy Leong
4 August 2018
TEDx Pickering Street
Singapore

~

I dance,
Because
I cannot walk,
The ground,
It is too strange.
I must count:
One, two,
One, two, three!

Autistic people are given many different labels by the non-autistic world. One of them is ‘clumsy,’ and by that measure, I suppose I am – it is a conscious effort for me to walk in a straight line, navigate bumpy surfaces, and stroll and chat at the same time. Yet, how does ‘clumsiness’ explain the ability to dance? When there is music, my body becomes freed from the tyranny of the walk, and the ground doesn’t seem so daunting anymore. Continue reading

Autistic Thriving @TEDx

Lucy and I shall be at TEDx Pickering Street this Saturday 4 August 2018. Come join us and hear my ideas on how autistic and non-autistic people may grow and thrive, not despite autism but because of the unique features of autism, and what society can learn from autistic persons.

[Autistic Thriving – Dr. Dawn-Joy Leong]
There is a great deal of ‘awareness’ these days about Autism – mainly from non-autistic observations. However, where are the Actually Autistic voices in this cacophony of opinions and interpretations? What is it like to be autistic? Discover how Dawn learns to thrive within her autistic ecology, not despite but because of her autism.
Grab your tickets here: https://tedxpsthrive.peatix.com/

[自闭世界的生意盎然]
自闭症在当下取得了广泛的关注,只不过这些观察结果都是从非自闭症患者角度获得的。可是抛开这些不和谐的观点和解释,我们从何听到自闭症患者的真实发声?作为一个自闭症患者是什么样子?在这场演讲中,Dawn会向我们分享她是如何在患有自闭症的情况下茁壮成长。

Disabled Leadership in practice

In a previous post, I mused about Disabled Leadership, the great divide between theory and practice that many disabled persons face, and suggested one fundamental element that is crucial to recognition of disabled participants in the conversation on disability: payment as a basic mark of respect. Now, in this brief ‘follow-up’ post, I’d like to provide some straight-forward concrete examples of its practice in the arts and film.

I’ve iterated and reiterated before, and now once more, I am no activist – I have an aversion for confrontational activity, but advocacy is something that most disabled professionals are forced to engage in (in some way or other) due to the dominating climate of ableism and stubborn ignorance surrounding the disabled practitioner. In other words, advocacy – sometimes quite vehement and insistent – is made necessary because disabled practitioners need to clear the debris-strewn paths, clogged channels, and polluted waterways so that we can proceed with our practice. Continue reading