On the Red Dot – autism

Lucy and I were featured on Mediacorp’s Channel 5 – On the Red Dot – last week, 21 July 2017. The programme was about autism in Singapore.

The full programme is at the Toggle site – though I am told that people outside of Singapore may not be able to access the site. Here is the link anyway.

A written article on the programme can be accessed via this link.

For friends wanting a ‘preview’ of my upcoming installation, Clement Space in the City (2017), do check out the videos!

Thank you, The BIG Anxiety Festival, for allowing the preview of my installation; and Moriya Diamond, for letting us use your space and providing such a wonderful teatime spread afterwards!

defragmenting

Scattered pieces. Little chips, broken off a brittle whole. Windblown. Each one a part of entity, identity and embodied Beingness. Sensory assault. Social weariness. Harsh terrains of normative colonial tyranny, treading through landscapes only the very bravest dare to traverse, yet with such naiveté.

Anxiety is a behemoth so nebulous, insidious and misconstrued. Woven tightly into thick existential tapestries, in myriad hues, flavours, scents, rhythms, patterns and textures.

The artist pursues relentlessly the life of the work. The autistic artist often risking much harm and desecration of Self, in order to bring forth symbolic gestures translated into the normative realms of understanding.

This autistic artist is multi-tasking, an activity autistic persons are often (most ironically) said to be profoundly impaired at doing. The anxiety levels are at head-pounding dynamic levels, a siren screeching, so high-pitched it is not heard by the human ear.

Lucy is not human. She hears. Her presence brings elemental equilibrium that no human intervention can mimic. The show must go on. Perhaps, even this, she understands in her parallel embodied knowingness?

The autistic artist grapples with mental exhaustion, physical pain and emotional weariness. Dealing with the complexities and follies of human interactivity – whether normative or autistic or neurodivergent – is exhausting. And hope-defying.

This weekend, we are working on the installations for Clement Space in the City (2017).

Lucy and her two little canine cousins are helping. Engaging with material and canine angels is clemency in itself… Defragmenting… Realigning… inside Clement Space.

The autistic artist presses ever onwards.

See you all at #thebiganxiety in Sydney!


Clement Space in the City (2017) is part of Neurodiverse-city, presented by The BIG Anxiety 2017 festival. At the Customs House, Sydney. Opens 20 September 2017.

Acknowledgements

2015-Sonata---Lucy-Sonorous-Repose

Sonorous Repose – Lucy Like-a-Charm 2015 by Dawn-joy Leong     (please do not reuse without seeking prior permission)

Dear Friends and Supporters,

We have made it! The PhD has passed muster and now it’s time for acknowledgements.

 —-

Scheherazade’s Sea – autism, parallel embodiment and elemental empathy.

 Dawn-joy Sau Mun Leong, UNSW Art & Design, April 2016

Dedication:

To my father, Dr. Leong Vie-Ying (1930-2007).

Acknowledgements:

This work would not have been possible without the following:

Deepest gratitude to my supervisors,

Professor Jill Bennett and Dr. Petra Gemeinboeck,

for your patience, guidance, advice, support, and for believing.

Thank you, Dr. Sally Clark, for your advice, encouragement and support.

My Lucy Like-a-Charm

My family:

Thank you, mother, Molly Chye Gek Ong, for your care and fortification.

My beloved baby-sister and faithful champion, Althea Leong,

thank you for always being here, there, and everywhere for me.

Dear brother-in-law, Robin Sing,

thank you for your patience, sustenance and unquestioning support.

My canine nephews, Bizcuit and Tiny Sing

Thank you, my friends who have played important roles in my journey:

Yee Sang, Ho

Rick Feedtime

Minh Vuong

Kateryna Fury

Colin G. Marshall and Misty Marshall

Shan Patterson and Sally Patterson

C.J. Wan Ling, Wee

Margie Anne Edmonds

Brad Beadel

Gavin Koh

Boon Ling, Yee

Shane Fenton

Andrea Kingan

Rosemary Wilkinson

and

Everyone who has walked a part of our journey alongside us, however briefly, every single moment has mattered.

The Big Anxiety Project

The-Big-Anxiety-Project.jpg

The Big Anxiety Project

The BIG Anxiety Project is an innovative citizen science venture developing creative approaches to health research and data visualization.”

Lucy and I are honoured to be a small part of this amazing project, which kicks-off on 5 June 2016, at the Museum of Contemporary Art, 3-6pm, level 6, with this interactive talk-cum-discussion session.

Friends in Sydney, if you will brave the weekend’s wet and wild weather, please do join us at this interactive event.

If you are not in Sydney or unable to attend the above event, please take part in the Big Anxiety Project’s survey on anxiety at the Black Dog Institute: click here!

Autism and me: a lifelong quest for Beingness and Clemency of Being

Autism and me: a lifelong quest for Beingness and clemency of Being.

Guest lecture, 27 August 2015, School of Education, UNSW, Australia.

Thank you, Dr. Iva Strnadova, for inviting me to deliver this guest lecture since 2012. It has become an annual event I look forward to greatly.

I promised Iva I’ll tell as many personal stories as possible within the time limit, and so I shall. But before I launch into the dramatics, I’d like to begin with some basic terminology.

When I first began on my research journey, I adopted the prevalent deficits-focused, pathological perspectives and terminologies, because that was all I knew at the time. However, I henceforth prefer to use the term “Autism Spectrum Condition” instead of “disorder,” because this better describes the neurological culture that autism actually is. I also no longer use functioning labels – “high” or “low” functioning – as they are not only insulting to autistic persons, but more importantly they are based on a system of measurements that does not properly respect the innate autistic functional modalities and paradigms.

Now for my fabulous stories. Continue reading

Scheherazade’s Sea – autistic parallel embodiment and elemental empathy

Paper presented at UNSW Art & Design Postgraduate Conference, 17-19 June 2015.

——

My Ph.D dissertation, tentatively entitled, Scheherazade’s Sea – autistic parallel embodiment and elemental empathy, is part of a protracted journey in search for Being: a detailed study of Self and Other, and examination of multidimensional interstices of dynamic, interactive reciprocities.

This research and practice rests upon three fundamental concepts:

  1. Parallel Embodiment,
  2. Endeavour of Empathy, and
  3. Space of Mind, from which emanates Elemental Empathy.

The theoretical foundation for this work is constructed from documented studies in neuroscience, anthropology, the arts and humanities, and personal anecdotal evidence from autistic individuals. At the same time, my artistic practice acts as concretising agency by creating experimental ‘sharable’ spaces that serve not merely to display autism but to invite dynamic, personified communion; connecting individuals across neuro-functional divides. Continue reading