Snoösphere 2017 – call out!

Upcoming project: Call Out!

snoosphere

Snoösphere, 2017

Snoösphere 2017 – a multisensory experience with a focus on autism, featuring autistic creative partnership.

Lull Studios and UNSW would like to invite autistic persons of all ages to join us as creative advisors in designing a gallery-based art installation.

Snoösphere is a space made up of interactive sound, vision, aroma, and touch-controlled elements, in which people can roam and explore. It is an immersive space for promoting discovery, empathy and understanding of the spectrum of neurodiversity.

Named for the noösphere, which is the phase in the Earth’s evolution after the biosphere – a future planetary sphere of mind – the Snoösphere promotes embodied consciousness of the sensory and energetic properties and performance of physical space.

We see this as the especial province of autistic artists. Instead of being passive end-users, autistic participants are an influential part of developing Snoösphere, putting into practice the ethos “Nothing About Us Without Us.”

Dr. Dawn-joy Leong is the autism consultant for Snoösphere, personally facilitating the interesting and fun autism-friendly sessions.

Participants will experience creative engagement and learn about the process of building a multisensory interactive environment aimed at supporting the sensory needs of autistics. Contributions from our autistic advisors will be duly acknowledged in the final production.

Introductory consultation sessions and workshops for small groups and individuals (completely free) will be held 17-20 November 2016, at UNSW Art & Design, Paddington.

Please feel free to contact Dawn-joy for more detailed information, or to register your interest in becoming part of our project. Dawn will reply to emails promptly and no question is too trivial.

Email: dawnjoy@mac.com

Phone: 0477424585

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The Big Anxiety Project

The-Big-Anxiety-Project.jpg

The Big Anxiety Project

The BIG Anxiety Project is an innovative citizen science venture developing creative approaches to health research and data visualization.”

Lucy and I are honoured to be a small part of this amazing project, which kicks-off on 5 June 2016, at the Museum of Contemporary Art, 3-6pm, level 6, with this interactive talk-cum-discussion session.

Friends in Sydney, if you will brave the weekend’s wet and wild weather, please do join us at this interactive event.

If you are not in Sydney or unable to attend the above event, please take part in the Big Anxiety Project’s survey on anxiety at the Black Dog Institute: click here!

Autism and me: a lifelong quest for Beingness and Clemency of Being

Autism and me: a lifelong quest for Beingness and clemency of Being.

Guest lecture, 27 August 2015, School of Education, UNSW, Australia.

Thank you, Dr. Iva Strnadova, for inviting me to deliver this guest lecture since 2012. It has become an annual event I look forward to greatly.

I promised Iva I’ll tell as many personal stories as possible within the time limit, and so I shall. But before I launch into the dramatics, I’d like to begin with some basic terminology.

When I first began on my research journey, I adopted the prevalent deficits-focused, pathological perspectives and terminologies, because that was all I knew at the time. However, I henceforth prefer to use the term “Autism Spectrum Condition” instead of “disorder,” because this better describes the neurological culture that autism actually is. I also no longer use functioning labels – “high” or “low” functioning – as they are not only insulting to autistic persons, but more importantly they are based on a system of measurements that does not properly respect the innate autistic functional modalities and paradigms.

Now for my fabulous stories. Continue reading

Scheherazade’s Sea – autistic parallel embodiment and elemental empathy

Paper presented at UNSW Art & Design Postgraduate Conference, 17-19 June 2015.

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My Ph.D dissertation, tentatively entitled, Scheherazade’s Sea – autistic parallel embodiment and elemental empathy, is part of a protracted journey in search for Being: a detailed study of Self and Other, and examination of multidimensional interstices of dynamic, interactive reciprocities.

This research and practice rests upon three fundamental concepts:

  1. Parallel Embodiment,
  2. Endeavour of Empathy, and
  3. Space of Mind, from which emanates Elemental Empathy.

The theoretical foundation for this work is constructed from documented studies in neuroscience, anthropology, the arts and humanities, and personal anecdotal evidence from autistic individuals. At the same time, my artistic practice acts as concretising agency by creating experimental ‘sharable’ spaces that serve not merely to display autism but to invite dynamic, personified communion; connecting individuals across neuro-functional divides. Continue reading

Reciprocating Self and Other – lessons from autism.

Reciprocating Self and Other – lessons from autism by Dawn-joy Leong

Conference paper presented at the Inter-Disciplinary.Net conference,

Strangers, Aliens and Foreigners

Thursday 5th September – Saturday 7th September 2013

Mansfield College, Oxford, United Kingdom.

(This paper has now been published in the ebook, “Experiencing Otherness: Multidisciplinary Perspectives“. Full draft paper may be downloaded from this link.)

Abstract.

Culture is the agglomeration of values, customs, and communication systems identifying groups of people, where demarcations can be geographic, economic, intellectual, or even neurological predisposition. In this paper, I shall discuss Autism Spectrum Condition as a mental culture, and investigate Self-Other identities from the perspective of a researcher-artist with Asperger’s Syndrome. Autism is widely portrayed by the general media as stereotypes exhibiting bizarre behaviour. Why is autism considered an aberrant existence? In reality, autistic individuals grapple daily with the complexities of Self and Other. Assimilation and communication is very much based on the autistic individual’s ability to grasp and ‘perform’ alien systems and realities. How much should we conform to the cultural tenets of Other at the expense of Self for the purpose of convivial integration, and how much to attend to Self for the sake of intrinsic preservation and need?

In the push for a more enlightened co-existence, some questions require address. When is co-existence considered cultural migration and when imposition? We are often strangers even in our own ‘homes,’ perennial actors and performers of Other, and thereby losing understanding and appreciation of Self. Should it be a compliment or insult when someone declares, “But you can’t be autistic, you don’t look or behave autistic?”

Perhaps a transdisciplinary approach to this conundrum is in order—with science as syllogism and artistic research and praxis as agency— to facilitate understanding and reciprocity between Self and Other.

Guilt of the Innocent

A follow-up musing on broken boundaries, disrespect, intrusion and inappropriate guilt.

This could happen to any person – having your personal boundaries overstepped and/or disrespected. And this could subsequently happen to unsuspecting subjects of senseless pranking. Guilt. The guilt of the innocent.

It isn’t the sole premise of the person with autism, although it is a fact that people with autism do lack certain implicit skills at detecting social nuances and are hence more vulnerable to the subtleties of social victimisation, ostracisation and bullying. Autistic people also have certain quirks which make them favoured targets for games of dominance and manipulation that seem so prevalent in the social-minded neurotypical culture system.

The latter features drive the guilt deeper. The idea that we have somehow created the scenario for people to jump into with relish, that our peculiarities are to blame for our victimisation. And then comes the huge question: Maybe I imagined the whole thing? This question plagues any thinking autistic adult, because the incidents are often so subtle, and so ridiculous, defying logic in such ways which make us doubt our own intrinsic reactions.

Even high functioning adults with autism have great difficulties figuring out this conundrum of guilt. However, we need to keep reminding ourselves of this: Nobody is ever deserving of senseless behaviour from others. Respect is a basic tenet of social interaction, regardless of neurological state. It is just plain wrong not to show others due respect for their personal space, their right to exist undisturbed, their right to not be subject to meaningless cruelty, no matter how small.

A Thin Fine Line

This is a musing about invasion of privacy and the thin fine line between funny and sinister.

When one has been accorded much care, consideration and respectful support from a great number of people, one may become not only quite overwhelmed, but also lulled into a feeling of security, such that when this sense of ‘safeness’ is challenged, one becomes suddenly unsure how to react. One incident was highlighted in my previous post, “Confronting the Invisible.”

Recently, I have been encountering a series of little events, each one so minute in isolation that only the very observant or meticulously private person would react to, let alone notice at all. I have tried hard, in deference to the more prevalent “hey, relax!” laissez-faire social perception of the majority, to downplay in my own mind, each of these events which nevertheless irked me greatly. However, now that I am faced with an escalating rate of recurrence of these ‘small things,’ and the accumulation of which are forming a disturbing but as yet nebulous denouement with an accompanying mixture of utter weariness and foreboding, I am finding harder and harder to brush them all off. Continue reading