by Mark White
Autism and me: a lifelong quest for Beingness and clemency of Being.
Guest lecture, 27 August 2015, School of Education, UNSW, Australia.
Thank you, Dr. Iva Strnadova, for inviting me to deliver this guest lecture since 2012. It has become an annual event I look forward to greatly.
I promised Iva I’ll tell as many personal stories as possible within the time limit, and so I shall. But before I launch into the dramatics, I’d like to begin with some basic terminology.
When I first began on my research journey, I adopted the prevalent deficits-focused, pathological perspectives and terminologies, because that was all I knew at the time. However, I henceforth prefer to use the term “Autism Spectrum Condition” instead of “disorder,” because this better describes the neurological culture that autism actually is. I also no longer use functioning labels – “high” or “low” functioning – as they are not only insulting to autistic persons, but more importantly they are based on a system of measurements that does not properly respect the innate autistic functional modalities and paradigms.
Now for my fabulous stories. Continue reading
Paper presented at UNSW Art & Design Postgraduate Conference, 17-19 June 2015.
My Ph.D dissertation, tentatively entitled, Scheherazade’s Sea – autistic parallel embodiment and elemental empathy, is part of a protracted journey in search for Being: a detailed study of Self and Other, and examination of multidimensional interstices of dynamic, interactive reciprocities.
This research and practice rests upon three fundamental concepts:
- Parallel Embodiment,
- Endeavour of Empathy, and
- Space of Mind, from which emanates Elemental Empathy.
The theoretical foundation for this work is constructed from documented studies in neuroscience, anthropology, the arts and humanities, and personal anecdotal evidence from autistic individuals. At the same time, my artistic practice acts as concretising agency by creating experimental ‘sharable’ spaces that serve not merely to display autism but to invite dynamic, personified communion; connecting individuals across neuro-functional divides. Continue reading
This is a musing about confronting, and the confrontation of invisible disability.
What happens when the invisible is confronted in a stark and abrupt instant?
A recent encounter inside the lift on my way up to my art studio brought me once more, eyeball to uncomfortable eyeball, with the conundrum of ‘framing’ an invisible neurological difference. In my case, it is autism – and this is an issue that autistics living in the normative realms are constantly faced with, because we exist and function in the midst of, and juxtaposed with, the ‘normalcy’ of neurotypical constructs and systems. Continue reading
This is the extended version of the lecture I delivered at the School of Education, UNSW, on 14 August 2012, to an undergraduate class, at the invitation of Dr. Iva Strnadova. Some of the content are repeated from an earlier lecture. The actual lecture was deliberately shortened to make time for a more interactive question and answer session. I thoroughly enjoyed the wonderful response and rapport, and any further communication on the subject is welcome!
My Life with Hypersensitivity and Asperger’s – lecture notes from a session with professionals in special education, specifically about sensory acuity and coping with hypersensitivity. (UNSW, School of Education, 14 May 2012, 5-7pm.) Continue reading