Scheherazade’s Sea: Wake Up in My Dreams

Dawn-joy & Lucy cuddle and leaning cheek to cheek, in fuchsia pink and red, amidst a fantasia of pink peonies, against blue sky and white fluffy clouds.

Update:
Our memoir-fantasie has been renamed, “Lucy Like-a-Charm,”

in honour of my beloved Lucy.

Scheherazade’s Sea Website is Active! Please check out our ongoing activities, photos, musings, and works-in-progress at https://scheherazadessea.wordpress.com/ .

Above is one of my favourite photos of Lucy and myself, taken in 2014, in Sydney, Australia. We are cuddling, leaning intimately cheek to cheek, eyes closed in peaceful contentment. I wore a fuchsia pink hoodie and Lucy is wrapped snugly in a red flannel snoodie that I sewed for her. We had just moved into a dilapidated house along William Street, Paddington. It was old, and cold, but we were warm and cosy together, curled up in a small couch with a bright pink throw rug. I created a fantasia image from the original photograph, placing us in the midst of a flurry of large, round peonies, against blue sky and white clouds. The poem, “Wake Up in My Dreams”, which will also be the title of our epic memoir-fantasie, when completed, appears on the right of the image:

Dancing with my shadows,
Whispering, “Good Night!”
Humming silent wishes,
Smiling deep inside.
Dancing with my shadows,
Jarful of moonbeams!
Come, lay down beside me,
Wake up in my dreams.
(©Dawn-joy Leong, 2010)

Lucy Like-a-Charm, love of my life, and a central figure in my journey, left the mortal realm in 2023. Since then, I have begun working on the final chapter of our epic multimodal transdisciplinary autobiography. It has been a bumpy process – churning, swirling, turning, tumbling, weeping, laughing, mourning, rejoicing, flying and falling all at once. I even survived a near-death experience a few months after Lucy departed, which forced me to stop working outside of home for an entire year. Art, with passion and purpose, is never easy. And I know that I signed up for the challenge when I broke away from the Golden Cage of pampered subjugation. There was never a moment that I regretted this concerted decision and action. But after Lucy suddenly left me, I was thrown into a dark vortex, lost in a desolation I had never known before. I simply couldn’t imagine a life without her anymore. Yet, she returned to me, vibrant and resonant inside my grieving spirit, bringing resolution to unanswered questions that I had written and sung about long before her appearance in my life. Lucy continued to be my channel of Divine Grace. And thus, I continued to live, and now, I embrace the honour of a profound Grief, the other side of Lucy’s perfect Love. A grief that did not break me, but instead is holding me up and leading me gently onward, even in the midst of my yearning to be with her again. I now see life and death from a different perspective, it is as if I have entered a whole new paradigm of existence where there is no longer a clear demarcation between the two.

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Autism and me: a lifelong quest for Beingness and Clemency of Being

Autism and me: a lifelong quest for Beingness and clemency of Being.

Guest lecture, 27 August 2015, School of Education, UNSW, Australia.

Thank you, Dr. Iva Strnadova, for inviting me to deliver this guest lecture since 2012. It has become an annual event I look forward to greatly.

I promised Iva I’ll tell as many personal stories as possible within the time limit, and so I shall. But before I launch into the dramatics, I’d like to begin with some basic terminology.

When I first began on my research journey, I adopted the prevalent deficits-focused, pathological perspectives and terminologies, because that was all I knew at the time. However, I henceforth prefer to use the term “Autism Spectrum Condition” instead of “disorder,” because this better describes the neurological culture that autism actually is. I also no longer use functioning labels – “high” or “low” functioning – as they are not only insulting to autistic persons, but more importantly they are based on a system of measurements that does not properly respect the innate autistic functional modalities and paradigms.

Now for my fabulous stories. Continue reading

Inside Undiagnosed Asperger’s Syndrome: the high school years.

This is the extended version of the lecture I delivered at the School of Education, UNSW, on 14 August 2012, to an undergraduate class, at the invitation of Dr. Iva Strnadova. Some of the content are repeated from an earlier lecture. The actual lecture was deliberately shortened to make time for a more interactive question and answer session. I thoroughly enjoyed the wonderful response and rapport, and any further communication on the subject is welcome!

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