Dear Friends, here is my most recent work. A fully digitalised re-arrangement of the original Scheherazade’s Sea, 2010.
Welcome to “Scheherazade’s Sea: stories and songs from a hidden world.”
In the next twenty minutes or so, through video, stories, poetry and songs, you will see, hear and experience tiny reflections from my Autistic world.
The title is inspired by Scheherazade in the ‘Arabian Nights’ folk tales, whose stories to the wicked Sultan helped her survive and saved her life.
My Scheherazade is an Autistic girl, journeying alone through an unkind world, where she encounters confusing twists and turns of lies, betrayal and disappointment. When at last, she begins to embrace and love her unique Autistic self with courage and determination, Scheherazade discovers that her Autistic world, Scheherazade’s Sea, while misunderstood by others, is actually a beautiful one, full of wonderment and hope, a deep and wide ocean alive with infinite possibilities. It is then, that she finds strength within to continue along her journey, bravely embracing her unique Autistic Joy.
“Scheherazade’s Sea: stories and songs from a hidden world” is fully digitalised and revised from its original version, which was performed in Hong Kong in 2010, and The World Stage Design Festival in Cardiff, U.K. in 2013.
Sound engineering by Karen Low (Singapore) Portrait of Scheherazade by Kateryna Fury (USA) Little Duckling narrated by Sumita Majumdar (UK)
Supported by the National Arts Council Singapore & SG Culture Anywhere.
This article was brought to my attention by an Autistic friend last night. The title sounded most promising: “Meet the autistic scientists redefining autism research”. However, I was disappointed to find the narrow, prejudiced focus and disrespectful, superficial treatment of the subject matter. If the author’s purpose was to amplify and highlight Autistic researchers studying autism in a positive way, they have failed to include a number of prominent Autistic autism researchers in the piece, and this exclusion indicates either a lack of thorough understanding of the subject matter or a deliberate choice of bias, or perhaps a combination of both.
Before I continue, I would like to make clear that this is a blog post, not an academic paper, thus I am writing in direct and pressingly immediate response to an article that has caused me some considerable mental trauma such that I have been unable to sleep all night. Nevertheless, I am also an Autism Researcher, part of the “community” mentioned in the article of actual Autistic researchers investigating autism from multiple perspectives, and I personally know a few of the researchers mentioned in this article, whose work I regard highly.
Autistic minds perceive and respond to the world in markedly different ways from the neuronormative, and even often from the neurodivergent non-autistic. In many cases, the ways in which autistics process and react to information and stimuli add unique multidimensionality to research, discovery and invention in all fields of study and practice.
The article completely misses the point of the richness of Autistic contribution to autism research, by opening with just one autistic researcher’s alleged reaction to the “great apes” and quoting that researcher, Monique Botha, as saying such associations are “nauseating”, thus insinuating that this has added to the mental health problems of autistic people. (I suspect poor journalism to be at fault here, from my experience of being misquoted by many a sloppy journalist). There was also derisive mention of robots, without in-depth consideration of the topic. The sweeping statement, describing the associations between the study of animals, robots and autism as “ugly parallels to apes and robots”, reflects a pathetic lack of knowledge about the actual work of Autistic researchers in these areas, which is saddening at best in an article dedicated to promoting Autistic researchers, and at worst adding to the mental health burdens of Autistic people by further stigmatising the eclecticism of the Autistic realm.
Here is what Dr. Dawn Prince-Hughes, respected Autistic primatologist, ethologist and anthropologist wrote in the comments section of this article:
I am the autistic researcher who, after years of rejection by neurotypicals, found myself under the connecting tutelage of captive gorillas and used my experiences with them to revolutionize how we see the Spectrum. As I have made clear in all my groundbreaking writings, it is speciesist to imply that the apes who taught me to be social — who have indeed helped my spectrum people in this way — are an insult to be compared to. If there is indeed no shame in being neurodivergent then we should appraise animals under a neurodivergent rubric rather than recoiling at their differences. Your attitude shows that such prejudice is alive and well….and ugly…despite the surface assertions of your article.
The following is my own response to the article, made nine hours ago, a time when I should have been tucking my beloved Lucy into bed (she did bark to tell me it was time for our bedtime ritual, but I was too busy typing out my comment because I was so distressed by this article that my unreliable humanity failed Lucy yet once again).
I am Autistic, I am also an autism and neurodiversity researcher, as well as a multi-art practitioner. I quoted Dawn Prince-Hughes work extensively in my PhD: “Scheherazade’s Sea – autism, parallel embodiment and elemental empathy” (2016). My research focuses on alternative empathic connectivity intrinsic in the autism paradigm. Prince-Hughes’ work has been pivotal to my research into a non-worded, acutely sensorial empathic resonance with the material universe that many (though obviously not all) Autistic people possess. I, like Prince-Hughes, have learned a great deal about my own humanity as an Autistic human – strengths and failings, rhythms and patterns of perceptivity, richness of sensorial interrelatedness – from observing non-human species. Humans have a great deal to learn from the ones they despise and feel superior to, mostly from imbalanced and uninformed assumptions. Neurotypicals view autistics as inferior because our communicative rhythms and patterns differ from the normative – are we not applying the same kind of biases towards animals when we say it is nauseating to be compared with them? Prince-Hughes’ work is groundbreaking, there is not disrespect for the human nor the non-human, her treatment of the subject and her insights could only have been achieved by a penetratingly sensitive Autistic mind. The author of this article has failed miserably to find this precious connection that many Autistic researchers – like Prince-Hughes and myself – have spoken about. As Prince-Hughes articulated in her comment, such thinking is not only speciesist but ignorant of the multidimensionality of Autistic researchers study in autism. The realm of Autism is a complex and beautiful one, and should be studied and respected from more than just the obsessively human-centric viewpoint. I, for one, am not ashamed to learn from non-speaking humans and non-speaking non-humans. I don’t study the great apes, but my research in Autism has found much inspiration from studying canine communication. Indeed, I agree with Dawn Prince-Hughes: “we should appraise animals under a neurodivergent rubric rather than recoiling at their differences”!
Apart from obviously not having read the groundbreaking work of Dr. Prince-Hughes, (and my own more humble PhD dissertation), the author of the article presents a view that is heavily biased and obsessively human-centric, ironically in so doing contributing to the stigmatisation of Autistic people that the author claims to be trying to dispel. Does the author even know that there are now many young Autistic researchers studying autism in relation to animals and the elemental empathic interconnectivity? This article has, in a few ill-chosen words, made a mockery of the valuable trajectories being explored by these Autistic brilliant minds.
Instead of viewing animals and robots as “nauseating” insults to our humanity, why not see them as potentially powerful channels or windows into richer tapestries of learning, discovery and connectivity? Is our human-centric world the only sentient one (we know by now that it is not), or perhaps the only important one (again, anyone with any knowledge of current animal science would know that it is not)? Of course, I am incensed when non-autistic ‘experts’ lump autistics together with animals, because their assertions lack any deep and thorough understanding of the autistic paradigm and that of animals. Of course, I am traumatised when non-autistic ‘experts’ try to use robots to teach autistic children about normative social skills (not autistic social skills, mind you, because we do indeed have our own social system) because these ‘experts’ lack empathic understanding of both autism and robotics. When one is face to face with disrespectful lack of true expertise wanting to dominate one’s own domain, of course, one’s reaction is that of vigorous and vehement rejection!
My issue with the animal-Autistic or robot-Autistic comparisons lies firmly in the ways in which these are made and presented – by non-Autistics. If the subject matter was researched and interpreted by Autistic researchers, the fundamental premises and approaches would be completely different. Based on what we already know about the ways in which Autistic brains perceive, process and respond to information, it is perfectly logical to expect that the Autistic researcher, if their passion was to study animals or robots, would have insights and draw associations that differ from the normative view. This is apparent in the groundbreaking work of Autistic animal behaviour specialists, Temple Grandin and Dawn Prince-Hughes. While I disagree with much of Temple Grandin’s outdated views of autism, her oft-quoted phrase rings true and clear to me: “Animals make us human.” (Bear in mind that although Grandin opened the doors to autistic representation, she nevertheless belongs to a different time and era, and her views have understandably been surpassed in the area of autism research and understanding.) Dawn Prince-Hughes’ work with gorillas is much richer and multi-textured, with a lot more sensitivity and tenderness than Grandin’s interpretation of cattle and horses. In fact, Prince-Hughes’ book, “Songs of the Gorilla Nation” is one of the most beautiful, empathic and resonant scientific discourses I have ever read. I have drawn from both Grandin and Prince-Hughes for my own study, and much of my PhD dissertation about autism, parallel embodiment and elemental empathy was inspired by my own connection with Lucy, my Greyhound. The more I observed Lucy and her interaction with me and the world, the more I became interested in studying canine communication, and the more I found resonance in my own Autistic realm. When I refer to Lucy as my muse, it is not from the feel-good anthropomorphic impulse so common in neuronormative ‘pet lovers’, but I use that description factually and literally, she is my source of scientific and artistic inspiration. I have learned far more about myself, my Autistic domain, and my humanity from Lucy than I have from any other human.
As for robots, although robotics is not my area of expertise by far, I am nevertheless fascinated by them, and I have no objections at all about using robots as one of the many ways in which to learn. I once took part in an experiment where I was alone in a strange room with a female robot (the Geminoid F) that I had never met before. Strange room, strange robot. I remember feeling far more at ease in the company of the robot than when I had to socialise with all the other strange humans taking part in the same experiment. Most others’ reactions were the opposite of mine. They described their experiences as “surreal” and “creepy”. I believe that if Autistic researchers were leading studies into the robot-Autistic connection, using robots as a conduit to learning, an entirely different space would be opened up for energetic discourse and discovery.
Once again, yet another human-obsessed, poorly researched article sadly lacking in empathic resonance has succeeded in adding to the trauma of Autistic people, despite claiming todo otherwise. Such a wasted opportunity. Perhaps Spectrum should pay someone like myself to write better features if Spectrum is truly interested in advancing the cause of Autistics. You see, Autistic people are human, and humanity is eclectic in the ways in which we exist. Is the human mind so small, so restricted and lacking in creative imagination that it can only understand and be uplifted by that which exists in the human realm alone? Is it not time that we look deeper, wider, higher and embrace differences – all differences – with the wonderment and respect that it deserves? Our human world is in a great deal of trouble and subjected to pernicious destruction because humans have for far too long – in all of human history, actually – focused far too overtly on our own existence to the exclusion and detriment of everything else on this earth. If we truly wish to heal the ills that we have wrought, we need to stop navel-gazing and begin to embrace what is outside of our tiny little domains.
Postscript 15 June 2020: The conversation is ongoing, which is healthy and I hope will provide new angles and trajectories to follow.
Monique Botha has written a lengthy response, so please check it out (beneath the article itself).
As I quite clearly said in my blog post: I, too, take umbrage at the way (mostly non-autistic) ‘experts’ use animals and robots as comparisons etc with Autistics, my reason is, like you, these comparisons emerge from an offensively erroneous perspective. However, researchers – autistic and non-autistic alike – need to be openminded enough to explore these connections, from the Autistic paradigm. Dawn Prince-Hughes’ work, and mine too, present powerful and valid angles which are important to autism studies, and there is a wealth of richness to be gleaned from here. In fact, if one is properly apprised of such Autistic driven work, one would discover that our Autistic driven research present cogent challenges to the other kinds of animal / robot research that we abhor. It is not as constructive to only present what is wrong with the approaches to one subject, as if one were to point out what is wrong plus present what is right, as a solution to the wrong. The problem with (mostly non-autistic) perspectives is – as you may already have been made aware of via the current article’s poor research and poor journalism – pursuing one thread without insisting on a multi-dimensional context, a lot of harmful misinformation and misunderstanding is propagated. Again, in the case of this article, the author has failed to do their homework. In fact, if you read Michelle Dawson’s Twitter comment on this article, you would find that it has not only upset Dawn Prince-Hughes and myself.
On an aside, I look forward to reading more of you(r) work, and perhaps you might have already added this other dimension to it, which I am unaware of.
THIS is why Nothing About Us Without Us is so crucial. Whether autistic or not, when presenting information, one needs to engage in thorough research from as many angles as are available. Of course I don’t wish to be compared in a derogatory way with anything at all – humans, animals or robots alike. However, because I know what I know, I would also qualify that with the kind of research that makes such comparisons from a respectful and even beautifully accurate and cogent perspective. Good research cannot make one assertion based on one dimension of the topic alone, it should thoroughly inspect and include other dimensions. In this case, yes, it is a travesty to be comparing Autistics in an insulting way with animals and robots. But researchers – whether autistic or not – addressing this problem should thus also present the ways in which these connections are being made with penetrating and groundbreaking insights that respectfully present new dimensions to the topic, and also emphasises the need for actual Autistic researchers in the field of autism study. The latter are cogent solutions and answers to the former conundrum. Why are researchers not even exploring or acknowledging this? Too much intense focus on humans alone may not be the answer to our human problems. Autistic people live in a wonderfully multi textured world. We should learn to discover this. Human-centricity, human navel gazing, will not solve humanity’s problems – as we can see from thousands of years of human history.
A term coined by me in my PhD dissertation, “Clement Space” denotes a mental and physical ‘space’ for sensory equilibrium, an oasis in the midst of raging, parched desert sands. Like empathy, Clement Space is not some beauteous space that comes from a wave of the magician’s wand. It needs to be designed, crafted and maintained. Calm and serenity actually require a great deal of active energy in order to create and achieve. It also needs guarding against antagonistic elements from within and without, i.e. from inside our own tempests as well as from people (other) who may encroach upon our carefully built peace, whether intentionally or not. Unlike teacakes on a platter in a fancy restaurant, Clement Space isn’t at all about waiting passively for others to provide, but an action – sometimes even quite vigorous – towards that much-needed state of rest and restoration.
In an ugly world, attempting Empowerment of Beauty can be a dreadful struggle, one which goes against the fundamental nature of Beauty itself. But we need to keep going, believing, hoping, lest darkness engulfs & destroys.
Imagine a world in which different kinds of minds contribute from diverse platforms to form a dynamic, cohesive, global whole.
Imagine safer, gentler and stronger communities in which eclectic ways of thinking may thrive within a Neurocosmopolitan culture of resonant, empathic vibrancy.
It is not my purpose to ‘fix’ what I ‘broken’, but to empower Beauty in the vulnerable and unnoticed.
Much Ado About Nothing? – Thoughts on the curious incident of the missing photographs.
Anyone reading or following my writings in social media and here in my website – especially my ‘friendly’ stalkers – would know that I have been fussing about having been omitted in the official social media for #APAC19 – the Asia Pacific Autism Conference 2019 – which recently came to a most successful end.
You may gasp at this, and ask, “Why no autistic Keynote?” Understandable, many have asked me this question. Well, to be fair to the Singapore organisers, what has been achieved in APAC19 already represents a quantum leap in the direction of inclusion and progress for Singapore’s autism scene. I cannot express how very genuinely pleased I am at this amount of progress made within such a short time frame. But this is what is great about Singapore – once the powers-that-be decide on something, we can do it really quickly and pretty well too. This is the very first time an autism conference in Singapore included any autistic voices at all. Actual authoritative autistic presence in autism conferences was unheard of before this. So, please hold off the harsh criticism and bear with us. Baby steps. In fact, this wasn’t really a baby step at all – the baby literally propelled across a huge ravine and up a formidable mountain in one grand leap! Kudos to the organisers for taking on board the suggestions they did, and embracing the theme of ‘thriving’ in such a positive way. Autistic adults in Singapore finally had the chance to stand up and speak out, and those who presented did so with great flair and panache. I am proud to be among such brave company. The stigma is real, and many of them had to think twice, or more, before deciding to ‘come out’ of the ‘autism closet’ into the public domain – because fear of losing one’s job on account of one’s neurological difference is a very real thing here in Singapore.
So, back to the grand ‘fuss’ that I made over the last few days about the seemingly trifling issue of a few photographs of me being missing from official social media. I should not even need to explain, because any reasonable and reasoning human being would know the import of this, but I have decided to do so, in case some people failed to grasp it (there’re always the stragglers, and this explanatory post is for them, because I don’t want to leave anyone behind).
Lucy and I shall be at TEDx Pickering Street this Saturday 4 August 2018. Come join us and hear my ideas on how autistic and non-autistic people may grow and thrive, not despite autism but because of the unique features of autism, and what society can learn from autistic persons.
[Autistic Thriving – Dr. Dawn-Joy Leong]
There is a great deal of ‘awareness’ these days about Autism – mainly from non-autistic observations. However, where are the Actually Autistic voices in this cacophony of opinions and interpretations? What is it like to be autistic? Discover how Dawn learns to thrive within her autistic ecology, not despite but because of her autism.
Grab your tickets here: https://tedxpsthrive.peatix.com/