I was invited to the Opening of the Children’s Biennale at the National Gallery today. My anxious mind of course required a two-day preparation for this, but I had been looking forward to it since the invitation arrived in my email’s Inbox. The build up was, of course, a gradual crescendo at first, and then a rapid stretto build up as the event drew nigh. Anxiety + hypersenses + attention to detail all jumbled together. Creating order from chaos is part of the reason behind all the careful planning that precedes every single occasion.
The National Gallery has now become my favourite art space in Singapore. I love old historical buildings, and this one is a grand one. There are many small little quiet nooks dotted around the huge expanse that one can duck into for some respite, if things get too overwhelming. There are some inaccessible spaces that wheelchair users would be unable to reach, unfortunately, due to the nature of the building, but they’ve done their best to make the exhibits as accessible as possible. I am truly bowled over by the National Gallery’s efforts towards access and inclusion, something I’ve not experienced to this extent in Singapore before. Lucy is welcome in this space, and they treated us like royalty the first time we came (which was a tad over the top, but I deeply appreciate the care they took of us, a stark contrast to always being stopped at the door with many a gruff, “NO DOG ALLOWED!”), but I left Lucy at home today because she wasn’t feeling very well.
Autism is trending these days. Well, it’s been top of the pops for quite some time, actually. The more sensational the better, it seems, thanks to neuronormative machinations. Big money is to be made here, so it’s not surprising that the field draws so many quacks and snake oil peddlers. From MMS (which is basically bleach solution) to ASEA water (saline water), to a plethora of expensive dodgy programmes claiming to help “cure” / “shed” / “overcome” / “reverse” Autism, the marketplace is busy indeed.
I can understand that parents, especially non-autistic parents, are desperate. Parenting is not easy by any measure. For a non-autistic parent of an autistic child, finding themselves awash at sea in a realm completely alien to their own, grasping at straws for quick salvation is not unnatural at all. However, what grieves me is, in their readiness to part with money for snake oil, it is their autistic children who will bear the brunt of this folly, the children who will eventually grow up into traumatised autistic adults or autistic adults deprived of their intrinsic worth performing poor imitations of neurotypicality. Continue reading →
Lucy and I shall be at TEDx Pickering Street this Saturday 4 August 2018. Come join us and hear my ideas on how autistic and non-autistic people may grow and thrive, not despite autism but because of the unique features of autism, and what society can learn from autistic persons.
[Autistic Thriving – Dr. Dawn-Joy Leong]
There is a great deal of ‘awareness’ these days about Autism – mainly from non-autistic observations. However, where are the Actually Autistic voices in this cacophony of opinions and interpretations? What is it like to be autistic? Discover how Dawn learns to thrive within her autistic ecology, not despite but because of her autism.
Grab your tickets here: https://tedxpsthrive.peatix.com/
In a previous post, I mused about Disabled Leadership, the great divide between theory and practice that many disabled persons face, and suggested one fundamental element that is crucial to recognition of disabled participants in the conversation on disability: payment as a basic mark of respect. Now, in this brief ‘follow-up’ post, I’d like to provide some straight-forward concrete examples of its practice in the arts and film.
I’ve iterated and reiterated before, and now once more, I am no activist – I have an aversion for confrontational activity, but advocacy is something that most disabled professionals are forced to engage in (in some way or other) due to the dominating climate of ableism and stubborn ignorance surrounding the disabled practitioner. In other words, advocacy – sometimes quite vehement and insistent – is made necessary because disabled practitioners need to clear the debris-strewn paths, clogged channels, and polluted waterways so that we can proceed with our practice. Continue reading →
My recent casual blog post, musing on Arts and Disability, and the devastating effects of non-disabled colonisation of the disability conversation, theory and practice in any field, with a focus on the arts, simply because this is my field of research and praxis.
“Perhaps it is time to take the entire conversation back and situate it on our own platform – the Actually Autistic / Actually Disabled stage. One that we choose for ourselves, not that which is designed and built by the non-disabled colonising forces. One in which there is no prerequisite social-political posturing of ambiguous, veiled or hushed up mumblings, no copious mists of gas lighting, and no contemptuous slime of condescension. Just honest truth and a light shining onto a path ahead clear of the debris of gurgling bloviation. Is this even a possibility, I wonder?”
I learned this new word from my friend Rick. I like it. It has a robust movement to its physical form, flow and force. It sounds and feels like thick copious slimy globules arising from a pit of bubbling sludge. This word has a sensorial constitution that matches its meaning. Thank you, Rick!
“Bloviation” – such a proliferate and aggressively dominating activity in the field of Autism and Neurodiversity. Autism is a trendy topic these days, isn’t it? Everyone – from the housewife ‘AutismMom’ to the Professor in Psychiatry, and the outright quacks touting ‘cures’ and ‘healing touches’ mushrooming like unbridled viruses in between – seems to be dancing vigorously around the jolly campfire of Autism.The word makes me think of the many (I have lost count now, it is a long and wearying list) instances of having to silently endure protracted lectures, workshops, conversations, discussions, seminars…